If you or someone you love has Autism, you’ve probably read books or articles, or visited various websites and online communities, to seek information about the condition. These resources often contain words and phrases not commonly used in everyday life or outside the Autism community.

We’ve broken down some of the most common Autism-related terms for you here, so you can accurately interpret and use them in the future. We’ve also included some quotes and posts from people with real-world experience to help you further understand what these terms mean to people with Autism.

Actually Autistic (AA)

This term, commonly seen as #ActuallyAutistic online, was created by Autistic people for the Autistic community. It highlights when content has been made or posted by an Autistic person.

Allistic

Used to describe someone who does not have Autism.

AuDHD

A relatively new term for someone who has Autism and Attention Deficit Hyperactivity Disorder (ADHD). These conditions often co-occur, so many people with one condition also has the other.

Example use: “As an AuDHDer, I find myself constantly flipping between seeking out and withdrawing from sensory stimulation. Anyone else have the same experience?”

Burnout

Existing in a world not built with the needs and abilities of Autistic people in mind can be challenging to navigate. Without the necessary support available, it can become stressful. When this experience of stress is chronic, it can lead to feelings of ‘burnout’, characterized by long-lasting feelings of exhaustion and reduced functioning capacity.

Illustrator and content creator Ella Willis shared this TikTok describing some signs they experience when they’re in burnout:

Masking

‘Masking’ refers to the behaviors Autistic people both repress and adopt to adapt to societal standards of ‘typical’ behavior. Someone masking may conceal behaviors they would naturally express in favor of exhibiting behaviors that may make them appear to fit in with their peers. It’s like a type of camouflage – people who mask are, in a way, acting as chameleons, shifting and changing their natural state of behavior to blend in with their environment.

Masking may involve changing facial expressions, tone of voice, eye contact, body language, and even how a person speaks. It might also involve participating in activities or doing things that make the individual uncomfortable, such as wearing clothes that they have sensory sensitivities to or forcing themselves to make small talk and interact with unfamiliar people.

Instagram user @neurodivergent_lou described one way they mask: “As an Autistic person, I pretend not to remember the small details about people, in case other people find it odd… It is [sometimes] interpreted as weird, creepy, or assumed that you have a romantic interest in someone if you remember the small details… an Autistic person may pretend not to remember the small details about someone so that it isn’t seen as weird.”

Meltdown

A meltdown may look like a temper tantrum but should not be considered such. It involves a temporary loss of control over a person’s emotions and feeling completely overwhelmed by the current situation. It is an intense physical and emotional response that Autistic people may have due to feeling overcome by the challenges they are currently facing.

Autistic creator Naomi Makesa shared this short film on TikTok about their experience with meltdowns:

Neurodivergent

This term is used  to describe people with brains that work differently than what is typical. It is often used when talking about people with conditions including Autism, ADHD, Anxiety, and OCD, to name a few.

On the other hand, ‘neurotypical’ is used to describe people who are not neurodivergent.

Neurotypical

Used to describe people who are not neurodivergent.

Perseverate

To ‘perseverate’ means repeatedly performing a behavior involuntarily, or without consciously trying to, and sometimes long after the initial trigger for the behavior has stopped. In regards to Autism, it is often used to describe when someone becomes stuck on an idea or topic. For example, continuing to ask the same question after having received an answer; lining up objects over and over, or having trouble getting past a memory or emotion.

Safe/Same food

Some Autistic people struggle with eating due to various sensory sensitivities to certain foods' temperature, texture, or flavor. Safe foods, also known as same foods, are foods that an Autistic person easily tolerates and will usually eat. Each person will have a unique mix of safe/same foods.

TikTok user @Kaelicompton shared this video about her experience as a parent trying to feed her Autistic son, Beckett:

Scripting

For some Autistic people, social situations can be challenging, as it can be difficult to identify and understand social cues, certain types of language, and other people’s emotions and behaviors. To navigate the stress and uncertainty that social situations may cause, an Autistic person may prepare and practice behaviors and phrases they can use in these circumstances.

Examples of scripting include pre-planning answers to questions that may arise during a phone-call or conversation, or practicing maintaining body language such as posture or eye contact.

TikTok user @emhahee shared this video about how they used scripts in their life, particularly during childhood and when starting to work as an adult:

Shutdown

Like a meltdown, shutting down is a physical and emotional response to an intense and overwhelming situation. Instead of an outward outburst, a shutdown usually involves the person drawing inward, refusing to interact with others and their environment due to their stress and overwhelm. Some signs of shutting down include becoming silent, stopping communicating, restricting movement, and remaining still.

Special interest

A person with Autism may be highly passionate about and interested in a certain topic. They may dedicate a lot of time to learning about and mastering this interest, sometimes to the point of neglecting other important tasks or self-care. They may also talk and share a lot about this interest with others, and may find it challenging to engage in conversations that aren't related to their special interest.

Reddit user @NaturesAperture explained how special interests make them feel: "For me, special interests aren't just hobbies. For me, it's something I need to do, not only for enjoyment but also for self-regulation. If I don't find some way to engage with special interests regularly, if not daily, it will lead to increases in meltdowns and shutdowns."

Another user, @ImpulseAvocado, described what it was like when one of their special interests was at its peak: "I thought about it when I woke up, as I was going about my daily errands, while I took my dog on walks, as I was falling asleep, etc. It took over my brain. I just wanted to think about it, write about it, watch it, and learn more about it. Pivoting to other thoughts and activities was genuinely hard."

Splinter skill

A specific skill that an Autistic person is good at, but that might not be particularly useful or relevant to real-world situations. For example, being able to memorize the names of many places, but not point them out on a map, or the ability to play a particular piece of music on the piano without fully understanding how to play other pieces, or how the instrument itself is learned. Some Autistic people might develop advanced skills or abilities that may not be expected of someone their age.

Stimming

Stimming is not limited to people with Autism, but it is a behavior people with Autism may perform. It means to ‘self-stimulate’ the senses, hence the name ‘stimming’, and it might look like what we commonly call fidgeting. Stimming usually refers to repetitive tactile behaviors, such as hand flapping, biting or picking the lips, or rubbing the hands together.

It’s not clear why stimming happens, but it is believed to be a strategy used to self-regulate emotions and physical sensations in certain situations, such as when people feel stressed or overwhelmed by sensory information in the environment.

Stimming can be either conscious, in that the individual is actively choosing to ‘stim’ (verb for when stimming occurs), or sometimes it will happen subconsciously, without an active choice.

Example use: “I’ve recently been using a pencil to stim by twirling it in my hair.”

Sources

Actually Autistic

Burnout

Meltdowns

Perseveration

Safe/Same foods

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